
See this sweet face? This would be my precious Missy Prissy. She is, hands down, one of the most remarkable people I know. She is kind and sweet and generous and thoughtful and I have ZERO idea where she came from because she is a 1000x better person than me or her dad were in our teens.
She is a puzzle and a FBI profiler’s worst nightmare. She is incredibly shy but with those who reach out and get to know here, she is hands down, the craziest funniest person you will have ever met. Her world is pink and glittery with its princesses and unicorns yet she is on route to test for her black belt in kickboxing. Her passion is volunteering with kids with special needs so she serves as a Vice President in her high school’s Best Buddies organization. American Sign Language is her great love and she is a member of the ASL honor society and one day hopes to be a speech therapist specializing with children with special needs and the hearing impaired. Combine all that with the fact she is a manager on our high school’s wrestling team and she is addicted to UFC fighting and you have my sweet baby girl. #paradox
So, a while ago, she starts to not feel well. ALL THE TIME. After every meal there were stomach issues…. bloating, gurgling, pain, etc. This went on for a long time. She has always been more “delicate” so I just thought she had a weak constitution. Finally, last spring we head off to the allergist. Oh boy, her back blew up with testing. Soy, tree nuts, peanuts, sesame, legumes, and all FOUR seasons. Great. What an inconvenience. Shots 2x a week and grocery shopping takes double to triple the amount of time. Did you know that soy is seemingly in EVERYTHING? It is seriously the sneakiest little shit I have ever seen. So we go on, this is our new reality. It is what it is. We don’t complain and we make the best of it.
She started feeling better after we eliminated those allergy triggers……somewhat. Nine months go by and she still isn’t “right”. So off to the GI we go. Five vials of blood later, almost passing out in the office lobby, ultrasound etc., I get a call from the nurse….
“Your daughter’s blood shows that she has a severe case of celiac disease”.
I’m thinking, “Celi-what?” I had honestly never heard of it so off to the google gods I go.
“Celiac disease is a serious autoimmune disorder that can occur in genetically predisposed people where the ingestion of gluten leads to damage in the small intestine.”
The information out there was pretty scary so I bought books and I researched. One evening after my husband went to bed, I read and read and read. Then I cried and cried and cried a little more. I read words like:
Autoimmune
Chronic
Small intestine damage
No medical cure
Possible precursor to other autoimmune diseases: Type 1 diabetes…lupus…. lymphoma
So much information. But you know what happened? I got mad. No, I actually got PISSED. At 16, when friends live to hang out at restaurants and have sleepovers, this all became so unbelievably complicated for her. I know. I know. I could have gotten a worse call. A much worse call. And the fact she can’t enjoy Popeye’s or Whataburger anymore is so a FIRST WORLD PROBLEM. But you know what? This is her problem and I am her mama so I am going to be pissed off all I want.
Not surprisingly, in that anger, I found a challenge. In the past, it may, or may not, have been suggested that I am a smidge over protective, over involved, and NO, I don’t see any similarities to myself and Beverly Goldberg (ahem) but my baby girl is hurting so CHALLENGE ACCEPTED.
Celiac had found its worst enemy. We are going to dominate and this will NOT rule her life. Now, she will have celiac disease her entire life and yes, there is no medical cure for the condition. The only way to heal the intestines, prevent further damage, and to feel good is to remove gluten from the diet. And I mean ALL gluten. Gluten is a protein in grains so obviously all breads, pasta, pastries are no no’s. If I thought soy was bad, gluten is seriously the bitch of all bitches. It’s in bouillon cubes. It’s in cream soups. It’s in spice mixes. It’s in fruit snacks. It’s in soy sauce for pete’s sake! It’s used as a filler in so many things you would never suspect. The list goes on and on and on….
Thankfully, businesses are getting smart. Many restaurants offer gluten-free options and grocery stores have the aisle of all aisles…the gluten free one! Yeah! We are going to dominate this bad boy! Off I go with my super cute readers to read all the microscopic print. Oooooh! Gluten free cookies! Let’s buy those! Crap. They are made with chick pea or almond flour (legume and nut allergy). Ooooh! Check out these neat little chocolate protein bites made with gluten free oats. Oh well, double crap, the chocolate has soy lecithin in it (soy). And it goes on and on and on. But a few things are found and we move forward.
Have I mentioned I love a challenge? Really? Seriously? I haven’t? Nah, impossible. I am the master of research and I am a completely self-professed amazing cook (ahem). This past Christmas I was able, thanks to the internet, to hack every family recipe to make them completely gluten-free and allergy free for her. And I can honestly, say, you would have never know the difference. Yes, the green bean casserole had to be made 2x because the first one was an epic fail and baking with gluten free flour to try to make her some Christmas cookies was beyond laughable.
But we learn. Apparently one can find individual cans of GF cream of mushroom soup online but only GF cream of chicken is sold by the case so I am the proud owner of 12 boxes of that favorite casserole necessity in my pantry. GF pretzels are like chewing tree bark but I did find some pretty good GF chocolate cupcakes. GF bouillon cubes taste like grass but some GF sausage is AMAZING. And the education continues…..
So we move forward in our new reality. We are ALL eating a lot healthier. And I’m sure when people come over to eat there will be a small amount of trepidation over what they will be served. We don’t eat out as much so we save money (which is good because retailers have discovered anything with GF on it can go for triple the price). And my sweet husband, who traditionally doesn’t grocery shop, has jumped onto this ‘we must read every. last. ingredient. listed’ at the store with me.
My handsome husband and I have a year and a half before she flies the coop off to college so we will be preparing for her to able to handle this on her own. We learn and we educate.
Yes, she will have this the rest of her life. And yes, in the grand scheme of things, managing it is no small inconvenience. But, it could be worse.
Despite this, she will still be amazing and impactful and the light in so many lives and she will touch countless people through her compassion and kindness.
So celiac, SHE WINS. And you can go suck it.







*****Warning: Completely cheesy post below******